Yesterday evening we were finally moved out of the PICU and onto the pediatric floor.
Lyra continues to do fine, sleeping a lot, but is still not feeling very well. She is on continual tube feedings and yesterday they increased the rate and the amount of calories she was getting and it didn't appear that she really liked that too much. We're just kind of holding on for the next few days to see this through, but Maren and I aren't likely to allow these continual feeds to last much longer. Lyra simply doesn't seem to feel well with them going and while we've been told over and over about her having reflux, which is likely, we don't think she'd have reflux if she were eating normally.
Hopefully with more rest and more weaning from her medications, she'll start to tolerate the feedings a little more and begin to feel better.
Posted by Tim at August 11, 2004 08:03 AM