October 05, 2004

The plan changes... again

We really shouldn't be surprised. It seems to happen with such regularity that we should expect things like this, but again we're blindsided.

We took Lyra into the hospital today for what was scheduled to be a pre-operative appointment. After checking her in and getting her vitals done, we were then told that there was no room in the PICU, so they couldn't do the surgery.

Then, we were told that there was some concern about Lyra's weight gain (or lack thereof). This was news to us. Througout her visits with her cardiologist, we were given the impression that her weight was fine to go ahead with the surgery. Now we're back to trying to get extra calories into Lyra for another couple of weeks.

This is now the second time we've gone into the hospital to have her Glenn done only to come away empty. I know it's a "temporary" setback, but I also know that time has a tendency to stretch when dealing with a hospital. It's two weeks now, but in a blink of an eye, it's another two weeks, or more.

The thing is, Lyra is a fun, happy, and active little girl. Before long she's going to be crawling and then burning even more calories. I very much hope we're allowed to get this surgery completed soon.

Posted by Tim at October 5, 2004 06:06 PM